Lessons from the Trek – Part 2

We’re in the middle of my 4 takeaway lessons from the Tri-State Trek. Catch up on Part 1 here. Well, hell. The most emotional part of the Tri-State Trek is...

By: admin on Jul 11, 2017

Lessons from the Trek – Part 1

Two weeks ago, DP and I flew up to Connecticut to participate in the Tri-State Trek, an annual bike ride and fundraiser for the ALS Therapy Development Institute (ALS TDI)....

By: admin on Jul 10, 2017

Need More Birds

May 29th marked three years since I was diagnosed with ALS, not that I understood the doctor at the time… And you know what that means: NEW tattoo! I’d hoped...

By: admin on Jun 23, 2017

Flying on one engine

On Wednesday-Friday of last week, my mom and I went to Gainesville, FL to see Dr. Emily Plowman at the University of Florida. She is a professor/researcher/clinician specializing in swallowing...

By: admin on Jun 6, 2017

Home Sweet, Accessible Home

  Thanks everyone for your kind well wishes on our new house! It’s been…educational. First off: my mom is the world’s most diligent, persistent, jaded, and questioning-to-a-fault realtor. This drove...

By: admin on May 23, 2017

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